Upcoming FACES Conference – 2016

January 30, 2016 Leave a comment

We encourage you to consider attending the upcoming E-Global “Faces of Encephalitis” conference, which will be held from April 15-18, 2016 in Cleveland, OH.  There will be at least one presentation devoted to autoimmune forms of encephalitis/encephalopathy, and these conferences always provide extraordinary opportunities to not only gain information, but to also meet with others who are walking in your shoes.

More information is available here: http://www.eventbrite.com/e/faces-2016-encephalitis-conference-registration-10475136415

 

 

Categories: Uncategorized

Be Sure to Check out HESA

January 30, 2016 Leave a comment

It has been some time since I updated this site.  Please be sure to check out the HESA website, at:  www.hesaonline.org where you will find much more additional, recent information.

Categories: Uncategorized

Upcoming Conference – San Diego – Feb 21-23, 2014

Upcoming Conference – San Diego – Feb 21-23, 2014

Encephalitis Global is holding a conference in La Jolla, San Diego, California from Friday, February 21 – 23, 2014. The conference is not limited to a particular type of encephalitis, and most presentations are applicable to anyone dealing with encephalitis/encephalopathy.

A number of people with Hashimoto’s Encephalopathy will be attending this year’s conference, and among the speakers is Dr. Melanie Alarcio, a neurologist in the Phoenix, Arizona area who has treated many patients with autoimmune encephalitis, and who also has a special interest in PANDAS.  Another speaker is Dr. Jacopo Annese, of The Brain Observatory in San Diego. Dr. Annese has been called the founder of modern brain research, and is one of the top brain researchers in the world.

The conference is called “FACES 2014” and past experience has shown these conferences provide a weekend of learning as well as a terrific opportunity to spend time with others who are dealing with encephalitis / encephalopathy.

You can get information and register for the conference here: https://www.eventbrite.com/e/faces-2014-encephalitis-conference-registration-4220890798

 

Categories: Uncategorized

Now Available at Amazon.com: “Understanding Hashimoto’s Encephalopathy”

December 31, 2013 1 comment

“Understanding Hashimoto’s Encephalopathy” is now available for sale at Amazon.com.  The book, published by the non-profit organization, Hashimoto’s Encephalopathy SREAT Alliance (“HESA”) provides scientific information, the latest theories on causative factors, a list of over 100 scientific articles about HE / SREAT published between 2010 and 2013, and 48 stories by HE patients and their loved ones that offer a detailed look at life with HE / SREAT including the struggle for a diagnosis, different treatment options, and what a patient can expect with a diagnosis of HE / SREAT.

The following link will take you to Amazon to the book listing: http://www.amazon.com/gp/product/1484883098/sr=1-2-catcorr/qid=1388504120/ref=olp_product_details?ie=UTF8&me=&qid=1388504120&seller=&sr=1-2-catcorr.

First-ever book about Hashimoto’s Encephalopathy to be published later this month

December 1, 2013 2 comments

The book, “Understanding Hashimoto’s Encephalopathy,” will be published later this month by the Hashimoto’s Encephalopathy SREAT Alliance (“HESA”), and will be available on Amazon.com beginning on or about December 14, 2013.

The book provides scientific information about HE, a comprehensive list of 100 scientific articles about HE published since 2010, and hundreds of pages of stories contributed by HE patients from around the world, in which patients and their loved ones describe symptoms, the search for a diagnosis, treatments, and outcomes.   

Copies may be pre-ordered from HESA at a pre-publication discount by following this link:  http://hesaonline.org/pre-order-the-hashimotos-encephalopathy-book/

 

 

 

 

Categories: Uncategorized

New scientific articles

November 3, 2013 Leave a comment

The following new scientific articles have been added to our list of HE/SREAT articles:

Clinical and neuropathological findings in Hashimoto’s encephalopathy: a case report

Neurological Sci. 2013 Sep 24. [Epub ahead of print]

Daniele Imperiale, Carmelo Labate, Roberto Testi, Alessandra Romito, Stefano Taraglio

http://link.springer.com/article/10.1007%2Fs10072-013-1554-y#page-1

_____________________________________________________________________________________________________________________

A case of Hashimoto’s encephalopathy misdiagnosed as viral encephalitis.

Am J Case Rep. 2013 Sep 13;14:366-9. doi: 10.12659/AJCR.889312.

L He, M Li, XH Long, XP Li, Y Peng

Full Text:
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3775618/

______________________________________________________________________________________________________________________

Diagnostic and therapeutic aspects of Hashimoto’s encephalopathy.

J Neurol Sci. 2013 Aug 15;331(1-2):67-71. doi: 10.1016/j.jns.2013.05.009. Epub 2013 Jun 5.

I Olmez, H Moses, S Sriram, H Kirshner, AH Lagrange, S Pawate

Abstract:

http://www.ncbi.nlm.nih.gov/pubmed/23759502

______________________________________________________________________________________________________________________

Anti-NMDAR encephalitis misdiagnosed as Hashimoto’s encephalopathy.

Eur J Paediatr Neurol. 2013 Aug 14. pii: S1090-3798(13)00125-6. doi: 10.1016/j.ejpn.2013.07.002. [Epub ahead of print]

M Mirabelli-Badenier, R Biancheri, G Morana, S Fornarino, L Siri, ME Celle, E Veneselli, A Vincent, R Gaggero, MM Mancardi

Abstract:

http://www.ncbi.nlm.nih.gov/pubmed/23953644

____________________________________________________________________________________________________________________

Several new 2013 articles re: HE

Please be aware that new scientific articles and case reports regarding HE are  being frequently added to the HESA website, at http://www.hesaonline.org.  

The current (complete) list of 2013 articles is as follows:

Anti-NMDAR encephalitis misdiagnosed as Hashimoto’s encephalopathy.

Eur J Paediatr Neurol. 2013 Aug 14. pii: S1090-3798(13)00125-6. doi: 10.1016/j.ejpn.2013.07.002. [Epub ahead of print]

M Mirabelli-Badenier, R Biancheri, G Morana, S Fornarino, L Siri, ME Celle, E Veneselli, A Vincent, R Gaggero, MM Mancardi

Abstract:

http://www.ncbi.nlm.nih.gov/pubmed/23953644

____________________________________________________________

Hashimoto’s encephalopathy: Identification and long-term outcome in children

European Journal of Paediatric Neurology; Volume 17, Issue 3, May 2013, Pages 280–287

Nafissa Mamoudjya, Christian Korffb, Hélène Maureya, Gaëlle Blanchardc, Dominique Steshenkod, Marie-Noëlle Loiseau-Corveze, Béatrice Hussonf, Raja Braunerg, Marc Tardieua, h, Kumaran Deiva

Abstract:

http://www.sciencedirect.com/science/article/pii/S1090379812002346

_________________________________________________________________

Recurrent status epilepticus associated with Hashimoto’s encephalopathy

Epilepsy & Behavior Case Reports; Volume 1, 2013, Pages 113–117

H. Viséea, C. Mabigliab, V. Vanderaspoildenc, M.-D. Gazagnesa, G. Gliberta

Link to full article:

http://www.sciencedirect.com/science/article/pii/S2213323213000297

_______________________________________________________________

A Patient with Hashimoto’s Encephalopathy Presenting with Convulsive Seizure Alone as the Initial Symptom

Clin Med Insights Case Rep. 2013; 6: 75–77. (May 2013)

Atsushi Mizuma, Yoshiaki Goto, Wakoh Takahashi, Shunya Takizawa, and Shigeharu Takagi

Link to full pdf of article:

http://www.la-press.com/a-patient-with-hashimotos-encephalopathy-presenting-with-convulsive-se-article-a3658

_______________________________________________________________

Hashimoto’s encephalopathy and autoantibodies

M. Yoneda

Brain Nerve. 2013 Apr;65(4):365-76.

Abstract:

http://www.ncbi.nlm.nih.gov/pubmed/23568984

________________________________________________________________

Thyroid Autoantibodies in Pregnancy: Their Role, Regulation and Clinical Relevance

Francis S. Balucan, Syed A. Morshed, and Terry F. Davies
 
Journal of Thyroid Research: v.2013; PMC3652173, published online April 2013. doi:  10.1155/2013/182472

Full text available at:

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3652173/  (Note: this article does not specifically deal with HE, however it describes the effects of thyroid antibodies on pregnancy, making it highly relevant to HE patients who are or wish to become pregnant.)

_______________________________________________________________________

Hashimoto’s Encephalopathy Associated with Anti-NAE Autoantibodies: Analysis of 101 Patients

Akiko Matsunaga, Toru Kishitani, Tomoko Muramatsu, Tomomi Kame, Masamichi Ikawa, Yasunari Nakamoto and Makoto Yoneda

Neurology February 12, 2013; 80(Meeting Abstracts 1): S29.002

Abstract available at:

http://www.neurology.org/cgi/content/meeting_abstract/80/1_MeetingAbstracts/S29.002

_______________________________________________________________

Hashimoto’s encephalopathy with hippocampus involvement detected on continuous arterial spin labeling.

Psychiatry Clin Neurosci. 2013 Feb;67(2):128-9. doi: 10.1111/pcn.12019.

Ishitobi M, Yoneda M, Ikawa M, Matsunaga A, Ueno K, Kimura H, Wada Y.

Link to Pub Med site:

http://www.ncbi.nlm.nih.gov/pubmed/23438170

________________________________________________________________

Hashimoto’s Encephalopathy as a Treatable Adult-Onset Cerebellar Ataxia Mimicking Spinocerebellar Degeneration.

A Matsunaga, M Ikawa, A Fujii, Y Nakamoto, M Kuriyama, M Yoneda

Eur Neurol. 2013;69(1):14-20.

Abstract:

http://www.ncbi.nlm.nih.gov/pubmed/23128836

______________________________________________________________________

Cognitive Impairments in Hashimoto’s Encephalopathy: A Case-Control Study.

J Wang, J Zhang, L Xu, Y Shi, X Wu, O Guo

PLoS One. 2013;8(2):e55758. Epub 2013 Feb 8.

Full Text:

http://www.plosone.org/article/info:doi/10.1371/journal.pone.0055758

___________________________________________________________________

Hashimoto encephalopathy presenting as progressive myoclonus epilepsy syndrome

Ravindra Aryaa, Vidhu Anandb, Maya Chansoriac,

European Journal of Paediatric Neurology; Volume 17, Issue 1, January 2013, Pages 102–104

Abstract:

http://www.sciencedirect.com/science/article/pii/S1090379812001493

 

 

Categories: Uncategorized
Follow

Get every new post delivered to your Inbox.

Join 172 other followers