Upcoming FACES Conference – 2016
We encourage you to consider attending the upcoming E-Global “Faces of Encephalitis” conference, which will be held from April 15-18, 2016 in Cleveland, OH. There will be at least one presentation devoted to autoimmune forms of encephalitis/encephalopathy, and these conferences always provide extraordinary opportunities to not only gain information, but to also meet with others who are walking in your shoes.
More information is available here: http://www.eventbrite.com/e/faces-2016-encephalitis-conference-registration-10475136415
Be Sure to Check out HESA
It has been some time since I updated this site. Please be sure to check out the HESA website, at: www.hesaonline.org where you will find much more additional, recent information.
Upcoming Conference – San Diego – Feb 21-23, 2014
Upcoming Conference – San Diego – Feb 21-23, 2014
Encephalitis Global is holding a conference in La Jolla, San Diego, California from Friday, February 21 – 23, 2014. The conference is not limited to a particular type of encephalitis, and most presentations are applicable to anyone dealing with encephalitis/encephalopathy.
A number of people with Hashimoto’s Encephalopathy will be attending this year’s conference, and among the speakers is Dr. Melanie Alarcio, a neurologist in the Phoenix, Arizona area who has treated many patients with autoimmune encephalitis, and who also has a special interest in PANDAS. Another speaker is Dr. Jacopo Annese, of The Brain Observatory in San Diego. Dr. Annese has been called the founder of modern brain research, and is one of the top brain researchers in the world.
The conference is called “FACES 2014” and past experience has shown these conferences provide a weekend of learning as well as a terrific opportunity to spend time with others who are dealing with encephalitis / encephalopathy.
You can get information and register for the conference here: https://www.eventbrite.com/e/faces-2014-encephalitis-conference-registration-4220890798
Now Available at Amazon.com: “Understanding Hashimoto’s Encephalopathy”
“Understanding Hashimoto’s Encephalopathy” is now available for sale at Amazon.com. The book, published by the non-profit organization, Hashimoto’s Encephalopathy SREAT Alliance (“HESA”) provides scientific information, the latest theories on causative factors, a list of over 100 scientific articles about HE / SREAT published between 2010 and 2013, and 48 stories by HE patients and their loved ones that offer a detailed look at life with HE / SREAT including the struggle for a diagnosis, different treatment options, and what a patient can expect with a diagnosis of HE / SREAT.
The following link will take you to Amazon to the book listing: http://www.amazon.com/gp/product/1484883098/sr=1-2-catcorr/qid=1388504120/ref=olp_product_details?ie=UTF8&me=&qid=1388504120&seller=&sr=1-2-catcorr.
First-ever book about Hashimoto’s Encephalopathy to be published later this month
The book, “Understanding Hashimoto’s Encephalopathy,” will be published later this month by the Hashimoto’s Encephalopathy SREAT Alliance (“HESA”), and will be available on Amazon.com beginning on or about December 14, 2013.
The book provides scientific information about HE, a comprehensive list of 100 scientific articles about HE published since 2010, and hundreds of pages of stories contributed by HE patients from around the world, in which patients and their loved ones describe symptoms, the search for a diagnosis, treatments, and outcomes.
Copies may be pre-ordered from HESA at a pre-publication discount by following this link: http://hesaonline.org/pre-order-the-hashimotos-encephalopathy-book/
New scientific articles
The following new scientific articles have been added to our list of HE/SREAT articles:
Clinical and neuropathological findings in Hashimoto’s encephalopathy: a case report
Neurological Sci. 2013 Sep 24. [Epub ahead of print]
Daniele Imperiale, Carmelo Labate, Roberto Testi, Alessandra Romito, Stefano Taraglio
http://link.springer.com/article/10.1007%2Fs10072-013-1554-y#page-1
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A case of Hashimoto’s encephalopathy misdiagnosed as viral encephalitis.
Am J Case Rep. 2013 Sep 13;14:366-9. doi: 10.12659/AJCR.889312.
L He, M Li, XH Long, XP Li, Y Peng
Full Text:
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3775618/
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Diagnostic and therapeutic aspects of Hashimoto’s encephalopathy.
J Neurol Sci. 2013 Aug 15;331(1-2):67-71. doi: 10.1016/j.jns.2013.05.009. Epub 2013 Jun 5.
I Olmez, H Moses, S Sriram, H Kirshner, AH Lagrange, S Pawate
Abstract:
http://www.ncbi.nlm.nih.gov/pubmed/23759502
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Anti-NMDAR encephalitis misdiagnosed as Hashimoto’s encephalopathy.
Eur J Paediatr Neurol. 2013 Aug 14. pii: S1090-3798(13)00125-6. doi: 10.1016/j.ejpn.2013.07.002. [Epub ahead of print]
M Mirabelli-Badenier, R Biancheri, G Morana, S Fornarino, L Siri, ME Celle, E Veneselli, A Vincent, R Gaggero, MM Mancardi
Abstract:
http://www.ncbi.nlm.nih.gov/pubmed/23953644
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Several new 2013 articles re: HE
Please be aware that new scientific articles and case reports regarding HE are being frequently added to the HESA website, at http://www.hesaonline.org.
The current (complete) list of 2013 articles is as follows:
Anti-NMDAR encephalitis misdiagnosed as Hashimoto’s encephalopathy.
Eur J Paediatr Neurol. 2013 Aug 14. pii: S1090-3798(13)00125-6. doi: 10.1016/j.ejpn.2013.07.002. [Epub ahead of print]
M Mirabelli-Badenier, R Biancheri, G Morana, S Fornarino, L Siri, ME Celle, E Veneselli, A Vincent, R Gaggero, MM Mancardi
Abstract:
http://www.ncbi.nlm.nih.gov/pubmed/23953644
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Hashimoto’s encephalopathy: Identification and long-term outcome in children
European Journal of Paediatric Neurology; Volume 17, Issue 3, May 2013, Pages 280–287
Nafissa Mamoudjya, Christian Korffb, Hélène Maureya, Gaëlle Blanchardc, Dominique Steshenkod, Marie-Noëlle Loiseau-Corveze, Béatrice Hussonf, Raja Braunerg, Marc Tardieua, h, Kumaran Deiva
Abstract:
http://www.sciencedirect.com/science/article/pii/S1090379812002346
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Recurrent status epilepticus associated with Hashimoto’s encephalopathy
Epilepsy & Behavior Case Reports; Volume 1, 2013, Pages 113–117
H. Viséea, C. Mabigliab, V. Vanderaspoildenc, M.-D. Gazagnesa, G. Gliberta
Link to full article:
http://www.sciencedirect.com/science/article/pii/S2213323213000297
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A Patient with Hashimoto’s Encephalopathy Presenting with Convulsive Seizure Alone as the Initial Symptom
Clin Med Insights Case Rep. 2013; 6: 75–77. (May 2013)
Atsushi Mizuma, Yoshiaki Goto, Wakoh Takahashi, Shunya Takizawa, and Shigeharu Takagi
Link to full pdf of article:
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Hashimoto’s encephalopathy and autoantibodies
M. Yoneda
Brain Nerve. 2013 Apr;65(4):365-76.
Abstract:
http://www.ncbi.nlm.nih.gov/pubmed/23568984
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Thyroid Autoantibodies in Pregnancy: Their Role, Regulation and Clinical Relevance
Full text available at:
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3652173/ (Note: this article does not specifically deal with HE, however it describes the effects of thyroid antibodies on pregnancy, making it highly relevant to HE patients who are or wish to become pregnant.)
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Hashimoto’s Encephalopathy Associated with Anti-NAE Autoantibodies: Analysis of 101 Patients
Akiko Matsunaga, Toru Kishitani, Tomoko Muramatsu, Tomomi Kame, Masamichi Ikawa, Yasunari Nakamoto and Makoto Yoneda
Neurology February 12, 2013; 80(Meeting Abstracts 1): S29.002
Abstract available at:
http://www.neurology.org/cgi/content/meeting_abstract/80/1_MeetingAbstracts/S29.002
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Hashimoto’s encephalopathy with hippocampus involvement detected on continuous arterial spin labeling.
Psychiatry Clin Neurosci. 2013 Feb;67(2):128-9. doi: 10.1111/pcn.12019.
Ishitobi M, Yoneda M, Ikawa M, Matsunaga A, Ueno K, Kimura H, Wada Y.
Link to Pub Med site:
http://www.ncbi.nlm.nih.gov/pubmed/23438170
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Hashimoto’s Encephalopathy as a Treatable Adult-Onset Cerebellar Ataxia Mimicking Spinocerebellar Degeneration.
A Matsunaga, M Ikawa, A Fujii, Y Nakamoto, M Kuriyama, M Yoneda
Eur Neurol. 2013;69(1):14-20.
Abstract:
http://www.ncbi.nlm.nih.gov/pubmed/23128836
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Cognitive Impairments in Hashimoto’s Encephalopathy: A Case-Control Study.
J Wang, J Zhang, L Xu, Y Shi, X Wu, O Guo
PLoS One. 2013;8(2):e55758. Epub 2013 Feb 8.
Full Text:
http://www.plosone.org/article/info:doi/10.1371/journal.pone.0055758
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Hashimoto encephalopathy presenting as progressive myoclonus epilepsy syndrome
Ravindra Aryaa, Vidhu Anandb, Maya Chansoriac,
European Journal of Paediatric Neurology; Volume 17, Issue 1, January 2013, Pages 102–104
Abstract:
http://www.sciencedirect.com/science/article/pii/S1090379812001493
New Article re: Thyroid Autoantibodies and Pregnancy
Those who have HE are all too familiar with the significance of thyroid antibody levels. This newly published article discusses the clinical relevance of thyroid antibodies in pregnancy:
Thyroid Autoantibodies in Pregnancy: Their Role, Regulation and Clinical Relevance
Full text available at:
New article added to research page
The following article was added to our list today. Please note that no abstract is up on the PubMed site, but presumably at least an abstract will be available soon.
Hashimoto’s encephalopathy with hippocampus involvement detected on continuous arterial spin labeling.
Psychiatry Clin Neurosci. 2013 Feb;67(2):128-9. doi: 10.1111/pcn.12019.
Ishitobi M, Yoneda M, Ikawa M, Matsunaga A, Ueno K, Kimura H, Wada Y.
Link to Pub Med site:
New Non-Profit Organization dedicated to HE
In the last few months, a new non-profit organization was formed: Hashimoto’s Encephalopathy SREAT Alliance (“HESA”). HESA’s website was launched in the last few days, and although it is still under construction, we urge you to take a look. Here is a link to the site: www.hesaonline.org
In the interest of full disclosure, I – hesilverlining – am the Executive Director of HESA. You will see some duplication of information between the HESA site and this site, most notably, the list of scientific articles. Providing links to the articles on both sites will allow even more people to find scientific information, which is a prime goal of this site and of HESA.
We are stronger when we are better informed.
