HESilverLining – My story
Someone recently posted a comment asking who I (hesilverlining) am, and what my connection is to HE. I am a patient with HE.
Two years ago I was a successful attorney. Unfortunately, I experienced a rapid decline in memory and concentration late in 2010, and early in 2011 I began to have difficulty with word finding. In February 2011 I had what co-workers thought must be a stroke while I was in the office. I was evaluated at the local hospital for stroke, but no evidence of stroke was seen on MRI/CT. I went home with a diagnosis of “complicated migraine.”
Over the next couple of months I began to find myself having more and more problems. I had amnesic episodes (took a vacation and had no recollection of it a week later). My speech became impaired. My memory became so faulty that I couldn’t be trusted to cook, even if I could manage to figure out the steps for making a meal because I would forget I was cooking and wander off, leaving things to burn. My balance became impaired, I began to have nystagmus and episodes of double vision. I would regularly become extremely confused and disoriented. I began having olfactory and auditory hallucinations.
I ended up hospitalized in April 2011, and a diagnosis of HE was made. After five days of IV steroids I made a miraculous recovery, only to relapse during tapering after I came home.
I found this site during the course of my searching, and because the creator of the site – ScientistSeeking – was involved in other things she offered to let me take over day-to-day management of this site. I now search the web every week for the latest scientific articles published about HE, and post links so that patients and medical professionals can easily find the latest information. Because I can no longer function as an attorney I find that keeping the list of articles updated is a way to feel I am doing *something* positive with my moments of clarity.
So…that’s who hesilverlining is!