Home > Uncategorized > First-ever book about Hashimoto’s Encephalopathy to be published later this month

First-ever book about Hashimoto’s Encephalopathy to be published later this month

The book, “Understanding Hashimoto’s Encephalopathy,” will be published later this month by the Hashimoto’s Encephalopathy SREAT Alliance (“HESA”), and will be available on Amazon.com beginning on or about December 14, 2013.

The book provides scientific information about HE, a comprehensive list of 100 scientific articles about HE published since 2010, and hundreds of pages of stories contributed by HE patients from around the world, in which patients and their loved ones describe symptoms, the search for a diagnosis, treatments, and outcomes.   

Copies may be pre-ordered from HESA at a pre-publication discount by following this link:  http://hesaonline.org/pre-order-the-hashimotos-encephalopathy-book/

 

 

 

 

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Categories: Uncategorized
  1. HEsurvivor
    December 13, 2013 at 12:09 pm

    I will be ordering this book very soon. Probably the most upsetting thing about this disease is there is so little known about it. Doctors, especially endocrinologists and many neurologists don’t know how to recognize it. There are not the same symptoms in every HE patient and not all people respond the same way. Corticosteroids are great but I had such terrible side effects from it. I prefer plasmapheresis and had a vortex port put in because of problems with the veins in my arms. Luckily I have a good neurologist who has seen HE before but what about everyone out there without a diagnosis? My neuroopthomologist just diagnosed a patient with HE after seeing me and my nystagmus problems. I am happy and sad for that patient. Happy that they will be getting help finally and sad they have to live with HE. But . again, we all need to know more about this whacky disease. Can’t wait to read the book!

    • December 31, 2013 at 11:22 am

      So true, HEsurvivor. I hope the book will be helpful to you and many others. Best wishes for a Happy New Year!

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